Day 16: Patience

Ever since Scarlett’s diagnosis I feel as if my level of patience has greatly improved. I don’t know if I just realize that it’s going to be a long road or if it’s a coping mechanism or I’m just too exhausted to fight.

I find myself being a lot more patient with the kids. I’m not in as big of a hurry to get things done. If bedtime gets pushed back to 8:30, 8:45, 9:00…at least they’re getting to bed with hugs, kisses and snuggle bugs. We are trying to enjoy every moment of every day. It’s a sad reminder that we never know how many of those moments we have.

I know that Scarlett’s bone marrow results should be in tomorrow. I haven’t been freaking out about it. It doesn’t really affect what happens today or tomorrow. She is still on the same road for the next 14 days and we can’t worry about the next step until we finish this one. So we patiently wait.

Scarlett’s hair is starting to fall out at a rapid rate. She doesn’t like to have hair on her hands so she told me “I have a hair” a lot today. It is falling out at a nice rate though. It’s not coming out in clumps which makes it a little less shocking. I am patiently waiting for the “right” time to shave her head. It’s the day I have been dreading. We will be patient on that front too!

Patience is something that I have never been blessed with. This a lesson in life that may make me a better person in the end.